Most recent email:


Hi all!

We probably only have one or two more of these email updates until there is nothing pressing left to report! As expected, at the end of last week we moved into the smaller long-term children's hospital! It's a lot better than we were expecting. He gets his own room, which is rare there, and the babies don't have as widespread intensive care so the nurses have more time to spend with each patient they have. Also, the 25th was Brigham's one-month birthday! We celebrated! (see picture) He gave us a great gift, too! We found out that the pre-infection prognosis was now out of date and he doesn't need a feeding tube in his nose anymore AND we probably won't need to put medicine through his nose tube at home! Yay! Candace was SUPER happy since we had to practice putting the tube down his throat and checking placement and all that jazz. No bueno. But, also! He has gotten all his bandages taken off! He's practically good to go! I told Candace we should steal him and bring him home now! He does still have an IV in his arm, but that's just to get the one medicine keeping him in the hospital for four more weeks and he can't take that one orally. Other than a couple medicines there is nothing keeping him from coming home! So things are getting better and better! 

He does have problems with reflux still, but the doctor has reassured us that it just takes time to get over that. I have been under the weather, but Candace got to take him back to Children's Hospital this morning for a check-up and so he got his first stroller ride (see insanely cute picture attached) and his third ambulance ride. I guess our old doctors said that everyone still talks about how cute he was and how nice we were, which is so nice of them to say. He has already grown an inch since birth and is back to steadily gaining just beyond his birth weight.

Thanks again for all of your support! It has been a very long ride, and we still have a good four weeks to go, but everyone's love and care helps us get through patience-inducing patches. Oh, also, we found out that the last day he receives his IV medicine and probably our discharge date is August 21st or so.